Prominent members of the Hollywood community are supporting the struggle of a PGA member and his family to fight a rare disease that is threatening the lives of their two daughters. The medical community is also watching as the experimental gene therapy is showing promise. However, the need for additional funding has inspired a Call-A-Thon, organized by fellow PGA members, scheduled for today at renowned talent agency CAA.
A group of Hollywood heavyweights including producers Marty Bowen, Michael De Luca, Scott Stuber and Rick Yorn will host a Call-A-Thon this Thursday at CAA headquarters. Their mission: to call everyone they know in hopes of shaking loose the $1 million that Miracle film producer Gordon Gray needs by October, to keep going with the gene therapy medical breakthrough that has arrested the deterioration of motor and verbal skills in his 5-year-old daughter Charlotte from Batten CLN6. That is the rare and fatal brain disease that befell Charlotte and also faces Gwenyth. The other daughter of Gray and wife Kristen at 3 also got the experimental gene therapy after she too was diagnosed with the disease. A third patient has also received the treatment, but the continuation and expansion of the treatment to other children will require more funding.